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Day 6 – Visiting the Surgeon

05 Tuesday Aug 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, husband, love

“Today like every day is a great day with you.  Seeing you smile with tears in your eyes makes me happy”

If you don’t like waits, this was not for you.  We had a 1pm appt and showed up 15 minutes early.  We didn’t leave until 3:30pm but it was one of the most educational 2 and half hours I’ve had in a while.

For all the Significant Others out there, always go with your spouse to the visit.  Waiting there alone was bad enough with my wife, so I can’t imagine sitting in that room alone.  I think at one point there was a 40 minute wait and I fell asleep while my wife ran through pamphlets.  All of the waiting had me exhausted and it finally caught up with me I guess.  I haven’t been sleeping well.  Worrying about my wife when she wasn’t looking was killing me.  The power nap really helped.

My wife wanted me to take notes as she wanted me to make sure I jotted down the good things as she heard that you only tend to listen to the bad things. My wife’s doctor was also my mother’s surgeon.  While we sat there I read the bio of a young hot shot cosmetic surgeon and was thoroughly impressed, but this surgeon was more comforting and real.  She had a great calming effect and she made me feel good knowing that she saved my mother and is going to save my wife.

My wife’s OB/GYN has to also be commended for detecting her cancer.  “Your OB/GYN did a great job” seems to be the common thread we are hearing.   I’ve never been someone who cared about their wife’s OB/GYN, but I appreciate her more than ever.  I wrote her an email tonight just to say thanks.  How can I ever repay her.

It turns out we were very prepared for what we needed to know.  My wife and I didn’t even have to glance at each other while the doctor told us what it appears her prognosis would be.  I think all this thinking had us thinking the worst.  While the news wasn’t the greatest, I think it brought a great sense of relief for ua to finally know what it is, what our population of statistics tells us that we have to deal with, and what our timing will be.

We had a pretty good idea of what our going in thought would be and after her surgeon told her that a simple lumpectomy might just be fine with some radiation, my wife told her what she really wanted.  A double mastectomy with reconstruction.  This is no laughing matter, but it is not my choice and is all up to my wife.  She knows what she wants and if this means possibly not ever having to deal with this kind of cancer again, that is just alright with me.

Again, I learned so much about the process and preocedures which will help us get through this.  Now we will do a lot more waiting.  Yes, there will be another month before the actual surgery.  There is no danger of the cancer getting worse so the best thing to do is go on living our lives.  We need to take care of our business right now and prepare for the best and worst.

Ironically my wife did hear all the positive and it was me who heard the negatives.  I tempered her enthusiasm a bit.  This is not a print but a marathon.  We will defnitely have some tough days ahead and I want us to be prepared for that.

We started to tell our 6 and 9 year old about mommy’s lump but we’ll have to do it again another time.  We can’t be afraid to use the word cancer.  We need to tell our children about mommy and let them hear it from us rather than someone else.  Again, our goal is to get our children smarter and more mature about life matters.

In the end, I was happy to see a smile on my wife’s face that I hadn’t seen for months.  It made me cry. I’m so happy for her.  I married the right woman.

Day 5 (TLF)

03 Sunday Aug 2008

Posted by route53 in Breast Cancer - A Loving Fight

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“Tomorrow will be like today and the day before that no matter what we hear.  You will still have the same dreams, hopes and fears.”

Tomorrow is the day we’ve been waiting for for 5 days.  We will visit with the oncologist and hear a preliminary prognosis for treatment.  I can feel all the anxiety and anticipation that my wife feels.  If they give us REALLY bad news, the question is why did we have to wait 5 days?  If it is within the realm of what we’ve been expecting, then the wait and anticipation will still heighten.

I’m just trying to keeep my wife calm and distracted.  Trying to do everday things as well as things that she’d like to do.  She’s had some anxiety and her doctor prescribed some anxiety medicine.  She keeps saying she hopes it hasn’t spread to her lungs because she’s feeking short of breath and I keep telling her that she’s just being nervous (I hope I’m right).

A bon voyage party for a friend, brunch with my mother and the kids and lots of activities seemed to wear her out today.  She did confide in me that she is going to dream harder and start to express desires about what she really wants for herself.  I told her that dreaming is free and fun.  Don’t stop anyone from dreaming.  We’ll start talking about them soon. 

Today we went through an exercise I created.  I think it did the right thing.  I had her tell me the top 10 outcomes or benefits of this life event.  I also told her to name 10 fears or negative outcomes.  I did the same as I wanted to see how she and I were either in sync or differed.  After 10 minutes she came to me and said, “I can’t name 10 negatives.  I guess that is a good thing”.  She smiled and I hugged her.  That is what I was thinking.  I told her the positives outweighed the negatives by far.  Secondly, we discussed the negatives and the reasons why those fears and negatives could be easily dealth with.  I gave her some good thoughts to laugh at. 

Below are the results of our survey.  I’m so glad I was able to help her realize that we were not only in this together and that I cared, but that there was a lot of upside:

Her Positives:

  1. Appreciate life more
  2. Appreciate and do more with kids and spouse
  3. get more proportinate and perky breasts
  4. Prevent a recurrence of canter
  5. Get a better handle of life’s obstacels
  6. Learn more about self that will benefit others
  7. Will develop knowledge to help others with adversity
  8. Hopefully be able to help our dauughter some day with a cure
  9. My kids will become dtronger people
  10. I can do things in my life I wouldn’t have done because of this (travel, etc.)

My positives:

  1. No more complaints about back pain or heavy chest feeling
  2. I might gain a golf partner or running partner
  3. kids become stronger and more aware of things
  4. Easier to buy her clothes
  5. She’ll embrace life and be even more fiercely stronger about life
  6. Greater physical self confidence
  7. We will have a tighter and stronger overall family bond
  8. We”ll truly kow who our firends are
  9. We’re attacking cancer now while we are strong and not weak
  10. Looks like no more big family travel during the holidays

Her Negatives:

  1. This could be more complicated than we think
  2. Still a chance of recurrence
  3. Difficult to deal with everyday life while getting treatment
  4. Cannot get optimal breast reconstruction to look normal
  5. Like #2 I get a life-threatening recurrence

His Negatives:

  1. Short term depression
  2. Painful recovery
  3. Possible hair loss
  4. Loss of drive in life
  5. Children are negatively impacted
  6. Some plans are missed or interrupted
  7. Fear of death
  8. Insurance rejection or complications
  9. Concern leaving her alone
  10. Physical scarring that she is not happy with

Again, all these positives and negatives will still be there tomorrow,

A Loving Fight – Day 4

02 Saturday Aug 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, husband, love, surgery

“You are more beautiful outside and stronger inside than ever before”

It is so hard to tell that to your wife when she is fighting the anxiety of being diagnosed with breast cancer.  The bouts of crying and the number of well-wishes she is receiving is probably overwhelming her.  The fact of the matter is that she is stronger and more beautiful than ever.  Maybe my eyes are welling up with tears as and I’m seeing a glow that I haven’t seen in 20 years, but my wife has never looked better.

She had a great day today getting out and continuing to do what she loves and then spending time with her family.  My mother graciously took the kids and we went out for a movie, dinner and alone time.  It was a chick flick that I would have rather waited for on DVD, but we went and I let her have her movie.  It was all about girl power and it made her cry.  It was her first crying fit in a couple days.  She really need it.

Distraction is the name of the game and keeping her busy is the most improtant thing I can do to keep her distracted.  We accomplished quite a bit today and she was fine until that movie got her back to thinking about the cancer again.  This is a strong woman who is used to fighting physically but this is not something she can beat.  Fate has dealt her a blow and now we must wait for the oncologists to help her set her plan.

Tomorrow will be a better day I’m sure.

A Loving Fight – Day 3

01 Friday Aug 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, husband, love

“Our marriage is a 50/50 partnership, but sometimes one of us shall carry the load.  Let me do it now.”

I think the waiting is just too much.  We have to wait another 3 days before our meeting with the surgeon and oncologist.  We are meeting with the physicians at UCSF.  My wife feels comfortable with that and has received reassurances for her decision.  She’s still anxious though and her doctor prescribed her some anxiety medication.

The network of cnacer survivors is amazing.  She has met with and spoken with so many survivors.  My mother, her friends, my cousins, my aunts, her mother’s friends,and her mother have all reached out to her.  Their strength has really helped.  I think seeing her mother’s strength has really helped her.  They all have one thing in common.  They are all survivors and that is making her feel better while we play the waiting game.

Meanwhile I am taking more of my 50% on and making sure to distract the kids who we have not yet told.  They’ll be okay and we’ll help them get through it with a sense of strength and courage that will allow them to fight any of life’s many obstacles.  It’s hard to just do the little things.  Not because I can’t do them myself, but I’m so used to seeing my wife do them for me with love.

As I said, my wife has a great support group, but it is amazing to me about how little there is for their significant others.  This is not just her cancer, but it is our cancer.  I snuck away the other night just to look at mastectomy operations on the internet.  I’m not one who can look and blood or anything involving an open cavity, but I forced myself to look.  I need to get used to it so my wife sees how strong I am for her.  I cry too.  I cry in the shower in the mornings while she’s still asleep.  I know she is going to be okay, but it is a very emotional event in our young lives.

In a weird way, cancer has been a positive distraction.  My days at work have not felt so long.  There is more urgency in the work I am doing and I’ve been more efficient.  Running is the same.  My nightly runs seem to have more energy and my runs seem to be with less effort.  Has the cancer made me stronger too?

Today I went to the Livestrong site and bought more yellow bands.  I want my children to wear them again.  I want them to feel like they are supporting their mother.  Again it is a way to help distract their minds too.

A Loving Fight – Day 2

31 Thursday Jul 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, dreams, husband, love

“Now is the time to dream BIG.  Dream bigger than ever.  Don’t just dream for today and tomorrow, but for what you truly want years from now.  “

My wife is such an unselfish person and I have always been tough on her.  Begging for her to tell me what I could do to make her happy. “What do YOU really want”, I’d always ask.  Carpe Diem has never been in her vocabulary.  I love her for that.  She’s never been a high maintenance partner and now I want her to be.  Well I’ve always wanted her to at least tell me what I can do for her.  I know the simple things in life that she enjoys, but I want to hear about the bigger things.  This has been like pulling teeth.  Literally, pulling teeth since both of our dads were dentists.

It’s actually a hard thing for someone else who hasn’t dreamed that way before.  I had her watch Randy Pausch’s full lecture in which he tell us his dreams of being Captain Kirk, working for Disney and playing in the NFL.  Hearing her laugh while listening to a man who was dying tell you how he is living his dreams was therapeutic for me. Hearing her laugh and cry made me feel good. I had to remind her that she was listening to a man who was not going to live versus her, a person who IS going to live.  She would likely say what she wants for our kids.  That is what her mom would say.  I reminded her that none of what Randy Pausch says in his lecture has anything to do with his kids although the lecture is for his kids.

I think she gets it.  I think she now realizes that dreaming is not the same as “wanting”.  She can still be unselfish.  I’m just asking her to be positive.  No more glass half empty attitudes.  More Tigger and less Eeyore.  As a consultant I strategized for my clients based on scenario planning and expected outcomes.  Cancer has put many scenarios in front of us.  I want her to have scenarios with outcomes.  Some of those outcomes will be common no matter what those scenarios will be.  If she wants to go to Hawaii, there is no reason we can’t.  If she wants to drive a Porsche, there is no reason she can’t.  I just want her to tell me what she wants so that I can do my job as a husband and help her work toward those dreams.

Cancer is funny in this way.  I always joke to my wife that it doesn’t matter what I say.  She’ll always listen to someone else’s opinion first.  That is why I had her listen to Randy Pausch’s lecture.  She knows I love her so my opinions are tainted and that is true.  In that same note, I think she is listening to the cancer.  The cancer is telling her that life is too short to wait for it to come to you.  Sometimes you have to grab for it and savor it.

She just told me she was going to create one of her famous “to-do lists” today.  I just reminded her to make it BIG and not very easy to cross off each of them……

 

A Loving Fight – Day #1

30 Wednesday Jul 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Tags

Breast cancer husband love

” I married you because you are a fighter.  Now is the time to fight.”

Today was my first of daily love notes to my wife.  I used to leave notes like this under her pillow when I would go away when we were dating and living far from each other.  Now I can just do this via email when at work.

This note is for me as much as it is all those who know someone who has dealt with cancer in their lives.  As a husband of someone who just found out yesterday that their wife has breast cancer, I’m trying to figure out how I can deal with it too.  What does a husband say or do? Yesterday my wife was diagnosed with ductal cariconoma.  We will be getting more results today and have already set up an appointment with the surgeon for next Monday.  The waits are the worst.  Not just for the person with cancer, but their loved ones.  All it does is give you time to think, which isn’t always a good thing.  You can definitely overthink things.

Thoughts go from, “what about my children” and “I want to be there for them” to “am I going to need radiation or chemotherapy” to “what about our family vacation?”.  My goal is to get us to continue to live life WITH cancer for however long the doctors say we are going to be living with it.  But the important thing is to remind my wife that we are going to LIVE and that I am going to live it with her.

I’m not going into this blindly.  My mother just had breast cancer 4 years ago and my mother in law had it 20 years ago.  Both are survivors and are great examples for me and my wife.  Although my wife and I knew that cancer would someday be a reality because of history, it just never seemed like something we could prepare for.  You never truly prepare for this.

What we do know is we are going to fight.  That’s what all the books say.  From Lance Armstrong to Randy Pausch there are tons of inspiring stories for those struggling with cancer.  My job is to help my wife.  Help her stay positive and stay tough.  Help her to show a good example for our two young children, ages 8 and 6.

For the spouse of a someone with cancer this is hard.  You have to stay strong while not sounding unsympathetic.  My wife always tends to want to think things through with the glass half empty.  I’m trying to teach her about the glass being half full.

My message to her today is to begin to fight, but first she must tell some people and set the base.  The base is to be a strong foundation of friends and family.  These are people we want to help us to fight by showing a positive attitude and helping to distract us.  Yes us and not just her.  As a husband of a wife with breast cancer I am living with it too.  I’m going to help her beat it.

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