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Route 53 – Enjoying Life's Joy Ride

Category Archives: Breast Cancer – A Loving Fight

Our battle with breast cancer

P.S. – He's Still With Us – Life is A Highway

30 Tuesday Dec 2008

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“This is my most special place in all the world. Once a place touches you like this, the wind nevers blows so cold again. You feel for it, like it was your child. “

– Moonlight Graham

Last night I was continuing with my cleanup.  I came across some old stuff in my dad’s roll-top drawer desk.  It has zillions of drawers and after almost 3 years I still am barely throwing away some things.  I came across some old Savings Bonds that he had bought for me (I had found these once before but they hadn’t matured yet and I remember giving the others to my siblings).  I could hear my dad saying, “Money’s tight, don’t spend it all on one girl”.  My dad was always funny like that.  I remember calling home from college one day to ask for help and his first words were, “Did you get a girl pregnant?”.  Fortunately I hadn’t, but my dad always had a comment to lighten the load.

Coming across the savings bonds seemed like he was still here.  In college, I remember he used to slip a $100 bill in between some clippings from my favorite columnist, Herb Caen, the Pulitzer Prize columnist who wrote so eloquently about the Beautiful Baghdad by the Bay known as San Francisco.  If ever a city belonged to someone, San Francisco belonged to Mr. Caen.  Herb Caen wrote about my dad on many occasions.  Many heard about the dentist who had a wife who owned candy stores (very true) and also about how my dad and our dog would retrieve golf balls stolen from the Presidio Golf Course Driving range by young “hooligans” and rolled down Arguello Blvd and hit them back onto the course at night.  My dad never told me about those incidences in our house.  I had to read them in Herb Caen’s columns after finding out from friends.

The columns were treasures themselves, but for me they were more than that.  They were a conversation between me and my dad.  How much he loved San Francisco.  How much he enjoyed raising a family here.  How much he wanted us to have more than he had to start with.

I’ve mentioned that I worked for a luminary on the aging of America named, Ken Dychtwald.  Ken has nightmares of those growing old, dying, and leaving theirfollowing generations with debt and no base to grow on.  My dad did not do such a thing.  As I watch movies like “P.S. – I love you” or the “Bucket List” or even the book called “My Life With Laura”, I see examples of people who give richness, instruction and other items to others even while in their last days or even after they are gone.

So finding those Savings Bonds was in a way a chance for my dad to pass something on to me this holiday season and he seemed to know I needed it.    I also found all the baby teeth (remember my dad was a dentist) that he saved from my brother and sister.  I put them in my dad’s old business envelopes and gave them to them as stocking stuffers.  I also found my dad’s golf shoes which fit my brother.  I told him he had large (size 7.5 actually) shoes to fill.  My dad had 4 holes-in-one in his lifetime.

One of my questions to Chad Moutray, author of My Life with Laura, was as to why he felt the need to publish his memoirs.  At first I felt it was more for his own sanity, then maybe for him to move on.  He kept saying it was for his daughter.  I now feel that if I were him, I’d have to put all those feelings in a place where they can be read by his daughter and he can leave them there.  She can then see the wish that the love of her parents wanted for her and her mother can be there for her forever.

Listening to win – A Loving Fight

27 Saturday Dec 2008

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Breast, cancer, incisions, marriage, nipple, skin-sparing mastectomy, surgery, wife

“The ear of the leader must ring with the voices of the people.” — Woodrow Wilson

I was recently asked if some of my earlier posts could be used on the site www.Fightpink.org.  Quite frankly I was surprised as I never intended for these postings to be used elsewhere.  The intent of this blog becomes clearer every day as it is more for me than anyone else.  My memory isn’t what it used to be, but more importantly I’ve always documented my thoughts and someday I’d like my children to know why I did what I did or know what I thought about particular incidents in our lives.

Reading those old posts was haunting.  I guess I’d forgotten already how I was feeling at that time.  That is pretty funny given that many say I have a photographic memory.  I laugh at that as I pretty much find myself to be so scattered in life that I just document my life meticulously so I won’t forget.  I listen and listen hard.  I listen to learn and listen  to comfort others.  I sometimes am asked why I don’t speak up on some conversations.  I guess that I’ve always believed that sometimes silence is golden.  And sometimes silence, pictures and images speak a thousand words.

Right now it’s all about listening to my wife’s questions.  I can see and hear her concerns about her surgical scars.  She doesn’t complain but tells me about the research and conversations she is having.  The skin-sparing matectomy has several kinds of scars, but the ones my wife had (over 18 only please) can be depicted through the attached photo links:

Areolar: http://www.justbreastimplants.com/gallery/incision_areola.htm

Crease: http://www.justbreastimplants.com/gallery/incision_crease.htm

The areolar was used for the original expander, but the crease was used to help reconfigure my wife so as to allow my wife to have a bit of a reduction.  Right now the ster-strips still cover the scars.  The black and blue are gone and now the healing once again becomes both physical and emotional.  While many would think this sounds more physical, I’m listening to my wife and her voice.  She wants to look normal.  Normal for me and for her.Pictures speak a thousand words for her.  Seeing things look almost normal will have an emotional healing that things are still the same for her.  Hearing her husband honestly telling her that he thinks she looks great is one thing, but she is going to have to believe it herself.  Any married couple knows that.

Tomorrow I think I’ll talk more about my own expectations and observations for 2009.

3 Days of Shopping to go – Life is a Highway

22 Monday Dec 2008

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Breast, cancer, Christmas, mastectomy, therapy

Christmas is the season for kindling the fire of hospitality in the hall, the genial flame of charity in the heart. – Washington Irving

Tonight’s run was a cold and painful one.  Each run is like every day in life.  One day you might feel good but the next day you might feel like you are running a marathon without shoes.  One day is different from the next.  It’s like life.  Many of us are given the same set of circumstances, but some make more or less of it than others.

I’m reading a book by Chad Moutray, another man who had a wife with breast cancer only his story ended tragically.  Why would I read it?  Why do I care?  I often wonder if I am alone in this world.  In fact I think we all wonder if our life is unique or normal.  Do others deal with similar issues?  Are all my peers being hit with the recession the same way? 

Chad, while raised differently, has many similar qualities to me.  I’m finding the book entertaining at times and hard to read at others.  It hits hard and close.  I’ll write more about the book at a later date once I am finished.

Today my wife went back to the clinic and the nurse practitioner supplied her with new and cleaner steri-strips to cover her scars.  Her breast surgeon came by to say hello.  This would be the last visit with her for another 6 months.  She gave my wife a hug and then said some complimentary words about me.  We had become more cordial with each other over time and recently discussed my blog.  I was hesitant at first to tell her about this blog , but gave her the adress.  She told my wife that she loved my honesty.  Whew!  I was not ready to go back and edit anything here.  While this blog is more of a channel for me to express the feelings which I can’t describe with words, I find it to be more of a release for me and hopefully a memoir for my children

I am encouraged by my wife though.  Her energy levels are high and her desires to enjoy herself and get back to a regular exercise regimen.  She is worried about the scar and I’ve told her that I’ll help her to get used to her new self and promise to be honest and open about my feelings with her.  It’s hard to argue with her when I want to be positive, but I have to pick my points.  Sometimes she deserves the ability to just be down.

We are getting ready for the holidays this year with a full house of family.  While everything might be the same as years past, just like running, it might be a bit more of a struggle than in the past

Looking Within for Happiness – Life is a Highway

22 Monday Dec 2008

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cancer, children, cookie, fortune, happiness

When you are down, look to your children and your children’s children for hope and happiness – Fortune Cookie

I looked at my fortune tonight as my son and daughter read it over my shoulder.  My daughter asked me what it meant and my son gave me a wry smile as if I had been rooked by the fortune cookie gods.  It is so true to have not just children but to have faimly around you who give you that unconditional love and respect.  That ear that will listen or that smile that brightens a gloomy day.  You don’t have to have that kind of felling with all your children or relatives because it just takes one.

These past five months have had me running, literally, to keep my sanity and energy.  Our children while never less important in our lives have not always been given the attention we’d like to have given them.  As a parent you shield them from life’s problems so that they can approach life without barriers and without bias while tryig to provide them with the tools that will help them to survive barriers and bias.  one of my more favorite movies in the past 10 years is The Pursuit of Happyness.  It is a true story about a single father who did all he could to raise his child in a world that was unkind to him.  Ironically it is a story that took place right here in San Francisco and at the time of the real stroy I was a struggling young college intern right across the street.

I’m not homeless, but the emotional adversity has been rougher on me than I thought it would be.  Finally after 5 months, my wife’s parents are here to help.  The relief in my body is a bit of a shock.  I don’t have to worry about my wife every second of the day and the ability to focus more on my children and reconnect with them on more than just a “bedtime story” level is something I really want and need. 

This weekend we found an hour between the raindrops to toss a baseball around.  It felt good to feel that ball pop in my glove and sting my hand.  After an hour, my hand was burning from my 9 year old’s pitches.  It felt so good for it to hurt like that.  I also took my daughter to go to see the Nutcracker with my mother.  For her to get all dressed up and have a day out on the town with her grandmother made her feel special and the smile on her face was all I needed.

So back to that crazy fortune cookie at San Tung Restaurant.  It was the most honest and truthful fortune cookie for me.  To those who wonder about such things.  I am superstitious.  I take the cookie that is pointing to me and I never read the fortune until I have full swallowed the cookie.  At least that is the rule my cousins always told me to obey.

I explained to my daughter about what it meant and I told them how the game of catch and the Nutcracker were perfect examples of all that I needed to make my life better this holiday season.  I know they don’t get it and they’ll still want the latest electronic games and gadgets for the holidays under the Christmas tree, but should they get my good fortune someday when they are my age, I’m sure they’ll at least understand what I was feeling tonight.

Another Trip to the Hospital – Life is a Highway

15 Monday Dec 2008

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Breast, implants, mastectomy

Those who are lucky are happy, and I’m happy to be lucky.  No excuses.

– Participant in the show, Survivor

The reconstruction surgery didn’t go as long as smoothly as we would have liked.  It lasted five and a half hours and will require more healing than we anticipated, but I think the relief of the surgery being over was felt both by me and her.  As soon as the surgery was over, a storm hit the city.  She was delirious but okay so I decided she was stable enough to go home for the night and get back first thing in the morning.

I woke up after 7 hours of sleep ( 2 more than I had been averaging) with a major knot in my stomach and a huge throbbing headache.  I think the stress of the week that I had been internalizing came crashing in on me.  I had read myself to sleep by reading he story of another husband who lost his wife to breast cancer.  I read the synopsis and realized how lucky I am.  I’ll write more about this book later.  I quickly grabbed some ibuprophen  and went to pick up some breakfast.  She hadn’t eaten in 35 hours so she would be famished.  Fortunately my mother had spent the night to watch the kids.  After calling her parents to tell them she was okay, I arrived at the hospital.  I would later find out that she had not told her parents before that they were going in to clear her margins some more.  She had not told them as she didn’t want them to be worried.

I was not only the last visitor to check out the night before, but I was also the first visitor to check in that morning.  Opening the door and seeing her sitting up and smiling was more than a relief.  She was in pain still and a bit week but she was hereslf again.  When she starts barking orders I know she’s fine.  There weren’t side effects from nausea like the previous surgery.  Both physicians came in and checked on her.  They said it had been slightly more complicated than thought, but that it just required more adjustments.

We were able to check out by 11am and we were soon a family again.  The children were happy to see their mother sleeping in her bed.  It was a bonding experience.  I left my son to watch his mother and get her anything she requested while I took or 6-year old daughter run errands to the pharmacy to pick up medicines, the deli to get sandwiches, and the card store to get my wife’s birthday card.  As I ran the errands, I could only think of the book I was reading and squeezed my daughters hand.  She was enjoying being my helper and I was enjoying the bonding time.

I slept the whole rest of the afternoon with my wife.  I needed the rest and she held my hand.   She requested sushi for dinner so I took the children out for sushi and brought back the leftovers.  Dinner was different.  A dinner for three instead of four.  I saw people look at us.  Was I divorced dad?  A widower?  It didn’t matter.  I knew what I was feeling.  I was thinking how much I wanted to be a complete family and how good that feels to me. 

I told her I am so happy to still have her with me and feel so fortunate.  I’ll never take her for granted again.  This week isn’t going to slow down with the holidays upon us.

Her parents arrive on Tuesday and there are a bunch of “honey do’s” that I have to get done around the house before they arrive!

Racing Down the Highway – Life is a Highway

12 Friday Dec 2008

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Breast, cancer, lumpectomy, mastectomy, reconstruction, surgery

I’m Driving like Hell, Racing Down the Highway – Blake Shelton

Although the lyrics above are from a song about a guy who realized he let his woman get away without telling her how much she means to him (which is not my case), those words seems to express my feelings these days about how my life is going.  I feel like I’m spending my days on those things which I shouldn’t and not on the people and things that matter.  Have I lost perspective?  It’s so easy to find your way in life one day and then lose it.  Yes, just like driving without a map, going 85 mph and not talking to the other people in the back seat.

 As I write this I’m sitting in the 3rd Floor waiting room of the CPMC Carol Franc Buck Cancer Clinic waiting for my wife who is undergoing her 3 hour reconstruction which includes a brief procedure from her cancer surgeon to clear margins that will help reduce her chance of cancer returning.  This surgery will be about half the time of her original surgery.  It is a weird feeling as I felt so prepared for her original surgery that today’s procedure both of us felt so unprepared.  The results maybe aren’t so much about mortality I guess, but I feel like I haven’t given today’s proceedings as much attention as they deserve.  The same goes with the time I’ve had to spend with our kids. 

Last night we each had a brain dump of thoughts.  When we communicate it is almost like a game of chess with a time clock.  First me for 1 minute, then her for a minute, then me, then her, etc.  We race through topics such as how she ran into her friend Jessica at the Starbucks (Jessica is also a breast cancer survivor and an inspiration to my wife), how our son was nominated for a summer Young Scholars program, holiday dinner plans, coordinating pick up of her parents from the airport, etc.  This type of communication might not work for many, but it works for us.  Twenty-four years together will do that to you.  In the end we finally smiled and did a sanity check (maybe it should be an insanity check).  How are we feeling?  Are we prepared for this next surgery?  Is she feeling side effects from the hormone therapy? Apologies to each other are also part of the conversation.  These are mostly from me for the guilt of not being there as much as I wish I could, but she understands the stress we are all going through.  Who says love is about never having to say you’re sorry?

Back to the present, I’m sitting here waiting with two other gentlemen and have about 90 more minutes to go of waiting.  The smile on her face as she chatted her way through the swinging surgical doors are so typical of her, and so atypical of the image of someone going in for a major surgery.  The looks of concern on their faces tell me that their cases seem more grave.  There is a certain somberness in this room that hits me and reminds me of sitting in this room three months ago.  There is a déjà vu with the smells and sounds all around me.  I hope we never have to be here again.  Once again the stress and anxiety of the week have caught up.  The sleepless nights have me and I need to rest.

The next 90 minutes are going to be spent napping and listening to an iPod mix of inspirational songs.

Hopefully the next couple of days will let me catch up, slow down and give everything its proper attention.

Now is the Time – A Loving Fight

08 Monday Dec 2008

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augmentation, Breast, implant, lumpectomy, mastectomy, skin-sparing, surgery

Now is the Time When You Show How Much You Care – Ronnie Lott

I was driving to work today listening to talk radio and heard Hall of Fame defensive back Ronnie Lott talking about his foundation and giving.  I was thinking to myself about how hard it must be to give at this time of year and in this economy.  Doing some of my own fundraising for our kid’s school I was sensitive to his comments.  But he inspired me by saying how he didn’t get as much from everyone but got more people to participate.

I’m feeling that right now.  As I ran last night I was thinking about my “Secret Santa” exchange which our family set up and just remembered how fortunate I feel that my wife is still with me and that my kids still have their mother.  I’ve decided that I have all the gifts I need.  If someone wants to give me a gift, they can donate those dollars to my wife’s cancer clinic, the Carol Franc Buck Breast Care Center.  My family is pretty bitter that I’m ruining their Secret Santa because I don’t want anything, but that is truly how I feel.  Even if they gave me something I truly want or have wanted, I just can’t enjoy it this year.  Now is not the time for me to be greedy.  I know my family wants to give me something, but I’ve been a materialistic person my whole life and right now my wife is the only thing I want and am so glad to have her.  

Maybe it is the stress of the holiday season, work integration projects, the bad economy, and my wife’s upcoming surgery this Friday, but I just can’t sleep or feel like I can rest.  Now is not the time to be selfish.  No matter how bad life is, the only way to feel better right now is not to feel sorry for onesself, but to make yourself feel better through the gift of giving to others.

Maybe my wife’s energy level is what is driving me.  She seems to be so strong now while on OS, Tamoxifen and bisphosphonates while staring surgery in the face again.  I just don’t know how she does it, but maybe for her now is the time as well.  I can only gather strength from her this holiday season which will be the greatest gift of all.

Finding our Heart – Fighting for Life

02 Tuesday Dec 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, hot flash, lumpectomy, skin-sparing mastectomy

If you lost love, do you know where to find it? – One Republic

My wife has reached what I think is her second wind in this battle.  She has resumed her gym membership, gotten off all of her pain killers, started wearing bras again, watching old episodes of Sex and the City (the ones where Kim Cattrall has cancer and laughs about hot flashes), and strted her 3 years of hormonal therapy (Tamoxifen).  She gets her first OS shot in two days.

What else?  She has completed her shopping list for the holidays and is getting ready to send out the holiday cards.  She has an energy and zest for life I haven’t seen in a while.  She cracked me up tonight when she mentioned that when her 75 year old mother comes to visit for the holidays that she is going to drag her to the clinic to get tested for the BRACA gene.  All of this energy is so beautiful in my eyes.  I am thinking of the days when my wife wanted to just curl up and cry.  This was all a little over 3 months ago.

Now we laugh at Kim Cattrall in a bad bra and wig giving a cancer speech while suffering through hot flashes.  Obviously not funny to all but we are having to laugh at it knowing that we are just around the corner from all of that.  Somehow just commiserating has helped her find her heart.  Our heart.  We’ve lost it the past few months as we wrapped it in armor and tried to protect ourselves from the pain.  The armor seems to have been shed and we are coming out again just in time for the holidays.

I can’t take credit though for her recovery.  Its is all her.  Her fight, her energy, her love, her heart.  I’m so glad she has returned to me and our kids.  He’s been there the whole time physically, but her true being is starting to come back and the smiles in our house are returning.

Still Thankful – Life is a Highway

30 Sunday Nov 2008

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Breast, cancer, economy, implants, Tamoxifen

“If I could, I wish I had the cancer, not my son” – mother of a cancer victim at the local pediatric cancer ward

This past weekend was a nice chance to sit back and be thankful for all that we have even though things are not perfect.  It has been a long four months but we are entering the home stretch.  We do have some issues and unfortunately I am frustrated that i can’t help my wife with some of her final decisions related to a clinical trial with bisphosphonates that could become a problem should my wife need oral surgery.

Other than that, life isn’t bad right now.  My wife has been able to get herself off of all her drugs and will be starting her Tamoxifen treatments tomorrow.  Her OS treatments start Thursday.  I will be having to watch her moods as these two new drugs entering her system might have an effect on her moods.  She is off of Ibuprophen and the Adavin.  Next Friday is her swap surgery and we will begin the recovery.  Its a lot to be going through with one’s body so I hope mentally she is okay.

I did have to tell our children that their mother was going to have one more procedure as I don’t want them to be worried when there mother has to go to the hospital again.  They are smart so we can’t fool them twice.  We told our kids that it is a smaller proceudre to check on their mother and make sure she is okay.

On a side note I took our son out this weekend and he got his first birdie.  I’m sure it will be the first of many.  What impressed me more was his low key manner and smile when I congratulated him.  He is learning to take life on an even level but I sure do hope that he learns to enjoy the many simple pleasures in life that he will have.

Well tomorrow is the first day of December!  I can’t believe this year is almost over!  It has definitely been one of the more trying years in my life and I am going to be happy when it is over.

Being Thankful – Life is a Highway

28 Friday Nov 2008

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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Breast, cancer, mastectomy, skin-sparing, Thankful, Thanksgiving

You share a bond and friendship that can’t be broken – Fortune Cookie

Given what we have been through this year, some might wonder how Thanksgiving might be different or how we can be thankful.  In fact, on my run tonight I spent a half an hour just thinking of all the people and things I am thankful for.  Well this Thanksgiving was different for me.  For one, I never before had a Thanksgiving where I didn’t sit down for a big Turkey meal with either side of our huge family.

In fact, today marks the 4 month marker since the day she was diagnosed with cancer and our world was set spinning.

The thought of almost losing the love of my life and the mother of my children at an early age to breast cancer has been a bit of a wake up call to me / her / us.  I am so thankful that she has been able to endure her skin sparing mastectomy to remove the cancer and has been given a new lease on life.  Today was spent “being thanksful” and thanking all those who have helped us to get through this year.  We also spent the morning helping out those less fortunate than ourselves.  Is not all about health and wealth.

To hear and see the stories of others we were able to see other people out there who are just as thankful as we are for what we have today.  In fact some definitely have more to be thankful for than us and I was happy to show our children how lucky we are.  This year though we have many friends, family, doctors, etc who are all part of the reason why we are thankful for their love and caring, for the health of my wife, and for the lessons we have learned from them to know what true compassion means 

In recent days we were happy to hear that my wife’s parents finally have decided to come out and see my wife.  I know it means so much to her that they will be coming to visit.  I guess we have one more thing to be thankful for this year.

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