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Tag Archives: lumpectomy

If the boob fits, wear it? – Post Surgery Procedure

27 Saturday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Allergan, Breast, cancer, carcinoma, caregiver, implants, lumpectomy, mastectomy, Mentor, skin-sparing

“You two are my favorite patients.”

Well our second visit to the PS was a little longer than expected.  More because he was busy.  By 9:30am he was running an hour and a half late. For the first time it seemed as we waited there that the patients all seemed older and more sick.  Many of them were asleep and to be awakened by the nurses as they were taken to the back.  My wife and I just held hands as we saw all these lonely people.  My wife later said that she was happy I decided to be with her as waiting in that room for 2 hours would have been real depressing although it is probably one of the more upbeat waiting rooms you could probably find in a cancer clinic with inspirational quotes from patients and pleasant music. 

Having visited the breast care clinic several times I have decided to contribute to their library of magazines.  Although I’m not sure many of the women want to read about golf, sports, photography or travel, I hope that the occasional husband or father or son who decides to go the extra step in this journey with their spouse, mom, or daughter can feel comfortable in doing so.

When we finally were called, Andrew, took my wife’s vitals.  He laughed and joked with us regarding my wife’s normally low blood pressure and how she wanted to be weighed on the “pound reducing” scale.  We actually notices one scale adds 5 pounds in the office.  Our respect for this office practice has grown so much.  While these physicians deal in a very “flashy” part of surgery, they have to deal with many real world situations that aren’t so glamorous.  Sitting in that room watching a 70 year old bald lady  walk in by herself in a very expensive suit, she still looked refined, but the sadness on her face was visible.  The chemo and the wear and tear of this journey had taken its toll.  When Andrew greeted her before us, he put on his best smile with a , “Nice to see you again, you’re looking strong”.  She finally emitted a smile. 

Our situation seems so minor compared to others and I’m sure emotionally seeing all of these sick people does affect the staff as well.  It did make us feel good though to hear Andrew say to us out of earshot of others, “You two are my favorite patients.”  Whether he meant it or not, we actually felt good that we were able to put a smile on his face.

As we waited another 20 minutes in the procedure room, the resident came in, then the fellow, then the nurse, then finally our PS.  My wife had forgotten her questions she had for him, but I was able to help her remember them all. It was good to ask.  They have so many patients it probably is hard to keep track.  We have to get another appointment so we will still need another 3 after the one we had.  That will make five visits post surgery.

He added another 100cc (total 350cc so far ) and gave my wife more recommendations for care and comfort.  My wife upped her dosage of her meds and felt much more comfortable to sleep and rest and was not awakened by the children this morning although she is still stiff.  The PS again was able to smile. He is such a serious guy, but even making him smile made us feel better.  He definitely had had a tough morning.  He had a better picture of where he was going with my wife and drew more pictures on her file.  He’s not a bad artist.  I think that is a good thing in his profession.  He told us enough to make us think we’ll have an exchange (barring chemo) sometime around mid-November. 

The real light hearted moment was when my wife asked him about implants – what kind, what size, etc?  He told her he won’t know until she’s in surgery again.  Depending upon the rib cage (the expander is currently sitting on the rib cage), any adjustments he decides to make depending upon what she tells him, etc. he will put what best works at that time.  When my wife asked him how he does that, he told her that they have this big storage room at UCSF just outside of the O.R. that has the largest consignment selection of implants in the US.  With the vision of this magical golden room full of implants my wife skeptically questioned, “Even more than they have in Beverly Hills?”  He proudly said that they have every imaginable size and selection readily available and approved in the US with more options than any other clinic in the country.

My wife’s eyes lit up, “So kind of like a shoe store, where you try on a few”.  She knows I hate shoe shopping.

He chuckled at the analogy, “Well we theoretically get one shot at this, so we try and get it right and there aren’t a selection of colors.  So if the shoe fits, that’s the one we’ll give you.  You might even have two different ones, but we try and match them.”  Great, we have an orthopedist and a comedian for a PS.

In the end the light conversation took my wife’s attention away from the growing discomfort that she was feeling in her chest.  She was too tight to drive home at that point, so it was fortunate I took her to this appointment. 

As a side note, my wife has had a cough almost since the day of her diagnosis.  The day the drains came out, it magically went away.  I always thought it might have been brought about by anxiety, but this almost proves it.  Interestingly enough, I think I developed a sympathetic cough.  My cough went away too.  I think last night was the best sleep we have had since this whole journey began.  Her chest still aches, but the exercises are helping and the higher dosage of pain killers is working.

On the way home, we decided that no matter if Andrew meant it or not, we would try to brighten the days of our medical team.  His comment of being his favorite patients meant a lot to us and reminded us that they are human beings too.  Each time we visit we would try and do something whether through nice conversation or a small gift of appreciation (more magazines for the waiting room, etc.) to let them know we care about them and appreciate all that they have done or are trying to do for us.  My wife reminded me that he referred to me as a patient as well and so did the PS.  Yep, we’re in this together.

Alright a Deep Breath and onto the Next Hurdle – A Loving Fight

25 Thursday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Tags

Breast, cancer, caregiver, expanders, implants, lumpectomy, mastectomy, skin, skin-sparing

“We’re in a good place but let’s keep on our toes”

And off she goes….I think my wife really is a new woman.  Although she has pain and deep discomfort from her expanders, her first full day without drains seemed to go without a hitch.  Although I still made breakfast and drove the kids to school, she had energy to go for a walk with our Principal’s wife, entertain my mother and sister who came by to check on her at lunch, and drive the mile to our kid’s school, read to our son’s 3rd grade class, and then make it home.  While still in discomfort, she said her energy level was more than back and all the exercise she had done to get in shape before surgery was a big help.

I sat at work worried and checking in on her.  I thought it was too much and stood at the ready in case she needed me.  I married a stubborn fighter.  She’s still soft inside, but she’ll fight when she needs to.  I reminded her that although she is feeling good today, the road is still long and we have some uphill painful battles yet to climb and we needed to keep on her toes.  That did it, I stepped over the line.  I needed to let her enjoy the moment.  Don’t rain on her parade, you fool!

The expanders though are our next hurdle and from what i’ve read the more they get filled the worse the pain  will get.  So although she says she doesn’t need me to take her there, I think I will just be there anyway to take her home just in case.  Funny we were so focused on the drains and then now our attention is on the expanders, the schedule for exchange and lastly the looming possibility of chemo.  It really is one step at a time.  While we are aware of each potential situation my word of advice is to cross the bridge when we get to it.  I think our physicians are amused by my wife’s lists.  My wife’s lists are famous in our house.  I don’t think there is a thing my wife won’t list.  I think our list of questions though will change from previous visits now that the drains are behind us.

Today she took her first shower and re-bandaged herself  Like many said it would, it felt good just tor un water all over her.  I think we’re going to have a water shortage here in California after that marathon shower.

One other note.  Sadly, someone out there on a message board thought it was “weird” that as a husband I was being an active information gatherer and was bothered by my being an active participant in my wife’s fight against cancer.  It really angered me and when I mentioned it to my wife, she gave me this big hug and assured me that many people don’t know what it means to have great support.  She’s right but I also think it is a sad state that someone would feel that there is some kind of perverted research that I am doing.  We’re talking about someone I love deeply and there is no end to what I would do to find out what I could do to help her.  I also feel saddened but understand that there are many out there who can’t feel open about what they share.

I also think she thinks it is weird mostly because I am a guy asking the questions as opposed to another woman . Many women ask questions but when a guy asks the questions she got scared.  This is sad because I think husbands need to be more active and help their wives through this.  The day will come when I will be in the hospital and I will need all of my wife’s support and I sure hope she can do for me what I did have been able to do for her.  People!  Cancer does not discriminate! Black, white, young, old, men, women, children….we need to fight the cancer, not the people!

Celebrate the Drains are Gone – 15 days post-Breast Cancer surgery

24 Wednesday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

≈ 2 Comments

Tags

Breast, cancer, caregiver, drains, expanders, health, lumpectomy, mastectomy, skin, skin-sparing

“Take Care of Your Body means Have a Nice Day”

And on the 15th day, we all sighed relief.  This morning we went into the hospital and had the drains removed.  They used Hurri-Caine spray to numb the area.  The nurse told my wife to breath deeply and as she breathed out the nurse pulled the drains.  First the right and then the troublesome left.  They were 6 inches in length each inside her and resembled long flat extension cords with little holes that the blood entered.  OIn the left side we saw that they were clogged and thus why we had leakage.

My wife said it truly is a relief.  She already seems like a new woman.  The laughing and giggling have started again.  She is still feeling small soreness and discomfort, but when asked to gauge her pain from a 1-10 (high), she said it was a 1.  This afternoon we took the first big step.  I had her drive to our kid’s school and back to pick up our son. She did it like an old lday with some soreness, but it made me feel good that she was able to accomplish this on her own. 

Ironically we ran into her surgeon at Starbucks on our way to the school.  She was surprised to see us out of context and glad to hear we were driving again.  “Just stay off the highways” she said.  Those in our neighborhood including the Principal’s wife were surprised and happy to see my wife behind the wheel again.  In fact, we are feeling guilty about all the meas we are still getting from our wonderful class parents.  I found that the other family which lost their mother to cancer is also getting meals prepared by the other families in our school.  How wonderfully blessed we are to be in such a wonderful community.

One of the funny things we all do is pick up the quirks of our parents and pass them on.  As my father was a physician and worked for the Department of Public Health in San Francisco during the height of the AIDs epidemic he used to always write notes and messages to us in our lunch boxes, birthday cards, etc.  They never said, “Have a Nice Day” or “We Love you”, or anything like that.  They always said, “Take Care of Your body”.  These notes continued onto college and even when ending a phone call. It was like the show “Hill St. Blues where the captain would say, “Hey…Let’s Be careful Out There”.

Dring my dad’s final months, we lived with him and I’m fortunate my children really got to know their grandfather.  One of the things they picked up was his silly phrase.  In honor of him we continue that phrase every morning.  The other day as I kissed my daughter and she ran off to class, she yelled “Take care of your body Daddy!”  A teacher heard the exchange and laughed.  I could only shrug my shoulders and smile.  The phrase was still embarrassing, yet so very important to our family.

As i mentioned, our life is one long race over hurdles and so linear that we just focus on the next task.  The next task is to deal with the expanders and the discomfort that will come as the expander pushes on the chest muscle over the next 2-3 weeks.

Tomorrow she beigns to spread her wings.

Two weeks post-surgery and it’s all about pain management

24 Wednesday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, caregiver, lumpectomy, mastectomy, skin, skin-sparing

“Peace begins with you”

Stats: Drain emission: 20ccs on the left 15ccs on the right

Well today is about tomorrow.  The drains get taken out and there will be a great liberating experience for her.  Right now I don’t think I want to be in there when it happens.  It might send shivers up my spine. Maybe I’ll just put a magazine up to my face.   I know though that she will take half a Vicodin and hopefully not be in too much pain.  If that goes well, she should be able to operate “heavy machinery” by Thursday.

For me it will help me in body, mind and soul.  I’ve lost 10 pounds from this ordeal and I’ve cut my exercising way down.  The nervous energy and lack of sleep has been taking its toll on me.  I really hit back into the work groove next week with travel and a speaking engagement at a conference (oh yeah, I need to write that speech).

Tonight was back to school night for our daughter.  The teachers are very aware of breast cancer and proudly displayed their “Susan G. Komen” Race for the Cure shirts from this past weekend.  My wife is the class mom this year but couldn’t attend.  The moms aware of my wife’s situation understood but interestingly enough nobody else asked where she was.  Each girl leaves a message on the desk for their parents.  This year’s theme, “Peace begins with you”.  Our daughter wrote, “Peace begins with mom.”

These days it sure does.  And tomorrow mom will sure have some peace when those drains are removed.

Route53

https://route53.wordpress.com

Two weeks post-surgery and it's all about pain management

24 Wednesday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, caregiver, lumpectomy, mastectomy, skin, skin-sparing

“Peace begins with you”

Stats: Drain emission: 20ccs on the left 15ccs on the right

Well today is about tomorrow.  The drains get taken out and there will be a great liberating experience for her.  Right now I don’t think I want to be in there when it happens.  It might send shivers up my spine. Maybe I’ll just put a magazine up to my face.   I know though that she will take half a Vicodin and hopefully not be in too much pain.  If that goes well, she should be able to operate “heavy machinery” by Thursday.

For me it will help me in body, mind and soul.  I’ve lost 10 pounds from this ordeal and I’ve cut my exercising way down.  The nervous energy and lack of sleep has been taking its toll on me.  I really hit back into the work groove next week with travel and a speaking engagement at a conference (oh yeah, I need to write that speech).

Tonight was back to school night for our daughter.  The teachers are very aware of breast cancer and proudly displayed their “Susan G. Komen” Race for the Cure shirts from this past weekend.  My wife is the class mom this year but couldn’t attend.  The moms aware of my wife’s situation understood but interestingly enough nobody else asked where she was.  Each girl leaves a message on the desk for their parents.  This year’s theme, “Peace begins with you”.  Our daughter wrote, “Peace begins with mom.”

These days it sure does.  And tomorrow mom will sure have some peace when those drains are removed.

Route53

https://route53.wordpress.com

2nd weekend after Breast cancer surgery – A Linear Life

21 Sunday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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blood, Breast, cancer, caregiver, lumpectomy, mastectomy, skin, sparing, surgery

“My life seems so simple yet so complex”

Going into the weekend, life seemed normal post-surgery.  We had just had a meeting with the plastic surgeon, we were ahead of sechedul and there seemed to be no complications.  Saturday morning we awoke to a “bloody mess”.    Blood in the sheets and her drains seemed to be emitting so much more fluid.  “Perhaps we knicked a blood vessel yesterday!”, no big deal was what we were told.  Bandages had to be replaced by me and it was still leaking so we went in to the hospital get this fixed.  All this on kid’s soccer morning!  Stress 101!

Well the doctor was on call and she patched us up.  A small hematoma had been looking for a place to drain and found it’s spot.  Yechhhh!  Well I guess things could have been worse, but at least we were now patched up and could live our SIMPLE but cancer-affected life the rest of the weekend.  Our kids?  They just thought it was one of the many follow-up appointments and it seemed to roll right off their backs.  Soccer Saturday stress was averted.

THE DRAINS!  They seemed to be our focus right now.  Cancer has a way of doing that to you.  At first it’s dealing with the diagnosis, then it is the waiting, then it is the surgery, now its the discomfort of the drains.  There are tons of other things going on in her life and you have to find ways to take her attention off those uncomfortable subject matters.  For me this has been the most difficult one.  It is just difficult visually to look at.  “My life seems so simple, yet so complex.  I take pills, I empty these lousy drains and I rest.  The rest of it just revolves around me.  Chemotherapy is sounding like a nice change of pace.”  Comments like that from her help me understand what she is going through.  She’s in pain.  she’s hurting, and she’s bored.  I really understand what she feels and it’s killing me to see her go through this.  Yes, this linear life has changed her.  It’s focused her.  It’s focused us. 

The new goal for now: Get these darned drains taken out!  Did we say goals?  We need to go back to the old posting about our goals and change them here.  We just never envisioned these drains being so painful.  Still emitting around 35ccs per side, so we are almost down to the magical 30ccs.

5 More Days with Drains – Post Breast Cancer Surgery

19 Friday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, caregiving, chemotherapy, drains, lumpectomy, mastectomy, reconstruction, skin, sparing

“It ain’t over til it’s over”

Well today was our post -op visit with the plastic surgeon.  We did learn that an initial 150ccs were inserted and he put in another 100 today.  If chemo is needed he will likely be almost done with everything before then. 

It was the first time I’d seen him smile too.  We got to know him a little more as he fixed her dressings again and injected more fluid.  Luckily they gave us more bandages because the nurse did not apply the dressings appropriately and my wife was leaking vascular fluid.  When I got home, my wife asked me to reapply the gauze and bandages.  This was actually the toughest job yet.  We had just hit the weekend and hopefully I did it right or someone would have to take my wife back in this weekend.  It was frankly a little too close  for me.

We still were not ready to remove the drains and they recommended keeping them in another 5 days. Ugggh.  I saw the sadness in her eyes.  I know they are uncomfortable for her and when they tried to push the date to next Friday I knew we had to fight for a Wednesday appointment.  I guess the fighting isn’t done yet.  It ain’t over til its over I told her.  She apologized that I still had to drive her everywhere and I told her no apology was necessary.  How anyone does this alone is just brutal,  She needs to be able to get out and become mobile again and I know she is getting antsy.  The drains are definitely not pleasant to look at for sure and cannot be that comfortable.

We at least have our next three appointments settled for the plastic surgeon, the removal of the drains, and the initial meeting with our oncologist who is supposedly one of the best nationally so we feel very fortunate that she is able to take our case.

Other than the darned trains and discomfort she is feeling okay after today’s procedure.  i guess that is easy for me to say, but I’m sure going to be glad when the coming week is over.  I know she is thinking the same thing.

Courage and Connectedness – One week after the mastectomy

16 Tuesday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, breastcancer.org, cancer, caregiver, lumpectomy, mastectomy, skin-sparing, support network, surgery

“It’s all about Courage and Connectedness”

One week after the surgery and we are slowly getting back to a semi-routine.  I am taking the kids to school and either I or someone else picks up the kids.  Someone drops in during the mid-day to check on her and in the evening to make sure she is okay at dinner.

Well we got the call today.  I’m not sure if we got the call we were expecting.  I guess things are never just black or white.  The news we wanted to hear is that her nodes both came back negative.  The joy in my wife’s voice was great to hear.  The doctor did say the margins were close and that perhaps we might want to do some follow-up after speaking with the oncologist.  My wife was still upbeat, but I felt like that still was not the perfect news in my eyes.  It was the first time my heart sunk.  Is she still going to need chemo?  Maybe.  Maybe just a light dosage.  I’m disappointed in myself for not being as upbeat as her.  I guess after all these months of trying to be positive, I let my guard down.

All in all though, we are still on schedule and we are thankful.  We still have the strength to carry on.

Tonight was our son’s Back to School Night in which they told us this year’s theme was about Courage and Connectedness.  The courage to try new things and face new challenges.  The ability to connect with others and stay together through tough times.  The words of the Principal almost choked me up as I sat there without my wife.  I felt like he knew that I was thinking those exact things.  We are having to have the courage to face each day anew and to face each challenge with the courage to carry on for our children.  The connectedness with our community has been so wonderful from the encouraging words to the pre-prepared meals.  We wonder what we did to deserve such kindness and help.  We really do feel so lucky compared to those who need more and don’t have such a great support network.

I even have to thank all the wonderful women and their spouses on breastcancer.org.  They’ve been so supportive and helpful and I’ve learned so much from them.  They’ve provided us with so much more information that we’d never have known to ask for.

Well, that’s it.  One week later.  Still holding at about 35ccs per drain and hoping that these drains will come out at the end of the week.  Oh that would be a nice treat.

6 days later – Trying to resume activities (training wheels)

15 Monday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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baby bommers, Breast, cancer, caregivers, lumpectomy, mastectomy, sandwich generation, skin-sparing

” I am superwoman” – Alicia Keys

Drain check – 30ccs one side, 40 ccs the other

Today was the first day back to a normal routine or as normal as we can have it.  I went back to work and took the kids to school (normally she does that).  I still got to work early and tried to bury myself back into a routine.  It was hard not to think about my wife alone at home.  I left her with everything she needed at a low level and poured out heavy items into smaller containers.  Shwe was fine and said it felt good to be independent.

My mother stopped by to help her with lunch and the kids were picked up afterschool for playdates.  We had an old family friend come by to help with dinner and getting the kids ready for dinner and get their homework done.  it was an exhausting day for her and she admitted to being lonely and having tears in reading all the well-wishing emails.  Unfortunately I had a late night meeting  but stopped in or called several times to check in with her.  I drove her car to work today and the CD was set to Alicia Keys singing “I am superwoman”.  My wife had been playing that over and over again in the car to psyche herself up prior to surgery.

I am hoping that on Thursday she’ll also be able to get her drains removed.  That will help allow her to drive again.  We’ll probably let her test her mobility on the weekend and see how comfortable she feels.

Today was a bit of a training wheels day for all of us.  Could she handle being alone.  Could I get my mind back on work?  Would the kids be thrown for a loop with a change in the schedule?  I don’t think we passed with flying colors.  We’ve bonded so well as a family over the past several weeks that being apart was hard for us and the kids.

It might be a little too early to try and get back to normal, but we will try.  We aren’t ready to take off the training wheels.  And that’s okay.

Hitting the Wall – First Weekend of Caregiving

14 Sunday Sep 2008

Posted by route53 in Breast Cancer - A Loving Fight

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Tags

Breast, cancer, caregiver, drains, lumpectomy, mastectomy, skin-sparing

“What’s a woman got to do to get a good pedicure?”

As part of the sandwich generation that has to take care of not only our spouses, but our children as well as our own parents, we are often being stretched beyond our limits.  Having a father who suffered a stroke and for the greater part of ten years survived with a severe case of memory loss and limited mobility as well as mother who had breast cancer, you’d think that this would be a task that I could be up to.

Well it finally caught up with me.  After taking my son to his soccer game on Saturday morning, I hit the wall with the sniffles, sore throat, cough and all over body aches.  My head was in a fog.  I had overdone it.  I needed rest or I wasn’t going to do anyone any good.  5 days of caring for a family of four both emotionally and physically was more than a drain.  I felt even a alight pang in my chest.  no time to have a heart attack!  Even with all the help with friends and family there is only so much you can do.

Make the lunches, pick up and drop off the kids from school, pour liquids for your spouse, wash her hair (if you really love her you’ll give her a pedicure), empty her drains, warm up pre-made dinners, do your own regular business work, do the laundry, do the dishes, go to school meetings, take the kids to gymnastics and soccer practices,…it is all too much to remember and then take care of yourself.

Is it worth it?  Getting sick? No.  Making sure your family feels normal and secure?  Yes.  I’d do it all over again if I had to, but wouldn’t wish this past week on anyone.  And I don’t even pretend to think I have it as bad as others. I am inspired and honor all those caregivers out there.   But this is a reminder for all those out there to take care of yourself as well and get lots of rest.

I slept in today (in another bed from my wife so as she wouldn’t get sick too) and it did me good.  I felt a 100% better although have a slight cough and scratchy throat (good enough to cheer our 49ers on to victory).

The good news is that the drains are emitting less fluids.  The first day we were at 70ccs and we are now down to around 45 ccs per day.  We’d like to get to 30 ccs. 5ccs is equal to about 1 teaspoon.  I gave her a second bath (kept the bandages/dressings dry though as we were told to keep them from getting too wet.  We also went for a walk around the block.  She said she felt okay except only for some tightness in the middle of her chest.  She is mostly down to taking Atavin and Keflix for now.  She has halved her dosage of Ibuprophen and is totally off of the Vicodin.

We had our family meeting tonight to confirm our arrangements for the week to make sure we are getting to and from school okay for the week and making sure the kids are mentally okay.  I’m going to need to check myself tomorrow.  Leaving her to herself worries me although I think she’ll be fine.  My mother will check with her during the day to make sure she is okay and a family friend ( who sometimes babysits) will be over to have dinner with us.

This week we have our first post-surgery appointments with the physicians to make sure all the healing is going well and maybe get our pathology report.

Let’s keep our fingers crossed it all comes back clear.

 If you want reading, check out an insert from today’s Parade Magazine Insert ( a bit of an advertisement, but relevant)

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