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Route 53 – Enjoying Life's Joy Ride

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Route 53 – Enjoying Life's Joy Ride

Tag Archives: Breast

I know you all hate this quote, but….

05 Friday Jun 2009

Posted by route53 in Route 53 - Life is A Highway

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Air France, Breast, cancer, daughters

“Life is Like a Box of Chocolates.  You never know what you’re gonna get.”  Forrest Gump

Life Lesson: Just go out and enjoy yourself.  No need to worry about the cards that you area going to be dealt.  You can’t change ides but moreso

This week my personal comfort of where I am in the stages of life was challenged.  I reacted the way all people do.  We all do it.  We can’t help it.  When surrounded by tragedy and tales of sadness that make you think, our body and mind react in a self-defense mode..  Let’s face it. When we all heard about the Air France flight, we thought about whether we’d want to fly that same route that plane took and how we’d be if we knew someone on that plane.

Even closer to home, a little 7-year-old girl who is a friend of my daughter found out that she has a brain tumor and will be undergoing surgery to have it removed.  The proximity of our relationship to the girl has us and our daughter’s classmates all feeling terribly sad for this young girl and her family.  I do have to admit that the thoguht ran through my head – “What if that were my own daughter?”  And of course I thanked someone up there that it was not my little girl.  Guilty?! Yes…we all do it.  We worry and pray for those struck with a curveball that life has tossed.  And we hope that curveball doesn’t get thrown at us .

I remember going to my uncle’s funeral when I was 16.  I cried looking at him in his casket.  Yes, he was one of my favorite uncles, but when I saw him and because he resembled my own dad, it just hit me how much I loved my own dad and thankful I was that my dad was still there.  Years later, when my dad did pass, my friends came to console me and I looked at my best friend who had lost his father a decade before me.  I looked and asked him how I’d do without my dad.  I know we are grown me but we still need our dads.  He told me you never get over the loss of a good dad.  I knew he wasn’t sitting there at the funeral saying, “I’m glad it wasn’t my dad” since he had already lost his dad.  In fact he told me that my own dad’s funeral reminded him of his own dad’s death and then he lost it.

When my wife was diagnosed with breast cancer last year, the moms in our kid’s school were great and really rallied around our family.  Once again I know it was proximity.  Proximity of being a mom with young children.  With one in 8 women getting breast cancer, these moms knew my wife might have been the first, but they knew the chances were high that other moms would get it and that they could be next.  They understood our troubles, but they also knew this was  a situation that could hit them just as easily.

Is it okay to feel this way?  Of course it is.  It is human nature.  This weekend is the funeral of  a friend of the family.  The eldest daughter asked me for some advice given that I was an expert and had been through the same thing.  I told her it was not the same.  Every night for 5 months I had read my friend’s bedside account of her mother’s poor health on www.caringbridge.com until she passed.  We can only learn from our own experiences and from those around us.  We are dealt many cards in life and it is okay to put ourselves in those situations and wonder “What if?”.  What if that were me?  What if that were my daughter or son?  What if my daughter had gotten cancer like that little girl http://www.cbsnews.com/stories/2009/05/19/earlyshow/health/main5024777.shtml?

Life is definitely like a box of chocolates that way.

Ah but life isn’t always filled with the coconut filled or cherry filled chocolates.  Sometimes you do get the nuts or caramels that you prefer and others start to follow because they wonder, “what if I had the nuts and caramels”  How happy would they be to be like me?  In the end we should all hope that we get the chocolates we want and when we don’t we should observe what we would, could or should do

The Spring Fix and Clean

29 Friday May 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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Breast, breast cancer, Breast cancer husband love

 April is a promise that May is bound to keep.  ~Hal Borland

The other day I received a nice thank your from the representatives of Phil & Amy Mickelson’s Foundation in response to my letter about dealing with breast cancer in a family with young children.  It really did put a little spring in my step.

I was spurred to write that note to one of my favorite golfers when I read about the hard time that he was having dealing with the thought that his wife was suffering at home and he was in a sport where he was traveling away from his family.  He was tormented and reacting on instinct.  I just thought he needed to know about some of the resources available to husbands of breast cancer sufferers and I’m glad I reached out.

Phil is one of those husbands who give men a good name.  When it comes to breast cancer, let’s face it, men just have a rotten name.  It isn’t that they don’t deserve it.  Some men have just not “done the right thing” by not being understanding, leaving their wives at a hard time, or just running from it al .  And those few men have made it hard for men to be understood.  The emotions flow and rage enters the picture.  I totally understand and empathize with these women and also with their husbands at the same time.  I guess that is because I know where both sides are coming from.  These women think their husbands might be insensitive or not understanding, but there really is some “reasoning” for some of the behavior.

Recently I got into a discussion with some women online after a woman’s husband was insensitive.  At first I read about it and thought, “here we go again, another man ruining the name of husband”.  Then I said to myself…wait, I’m not much better.  That could very well have been my own wife complaining about me.

Cancer is a tough ordeal.  For a man who has to watch his wife suffer with breast cancer, there is no greater feeling of helplessness.  We’re men.  We like to fix things and there is nothing more that we want to fix is the broken pieces of the only woman in our lives that means more to us than our own mother.  For me, the drains, the blood and the visits to the doctors (things I was not comfortable with) were just part of the healing process.   Most men don’t want to talk about their fears and especially with their own wives who don’t need to hear from their husband about how scared they are when right now they might need a rock or a sounding board and not a whimpering husband.  Heck, they’ve got cancer, not us!  When we aren’t that rock or sounding board though, then we get that bad rep.  Quite frankly I think my wife got tired of all that smothering.  She didn’t want to be thought of as sick and my fawning all over her just reminded her of her illness.

The monthly doctor appointments are continuing shots and side effects of her cancer trial drugs have become a normal part of life that get acknowledged quickly before we go to bed at night. 

“How did it go?”

“Okay, I only waited for 45 minutes.  The shot was easier this time.”

“Great. Good night.’

It really has become casual in conversation because of her desire to ease my burden and not have my attention focused on her.  Similarly I have to pay extra special attention to let her know that I do know she isn’t out of the woods.  She needs to know that if she wants that attention, I will give it to her.

So back to the discussion, the husband was asked by a wife about what her thought of her recent construction.  The husband was pretty dismissive and understandably the wife was a bit upset.  At first I wanted to jump on that bandwagon of saying what a jerk the husband was.  Now I love my wife and “not just her breasts”.  They has always been an asset for her before cancer and she’s been always conscientious about their appearance, but I do find myself trying to remind her that I don’t mind her focusing on them health-wise, but it is heremotional well-being that I care about more.  So in my case when asked about her scars and if the neckline on her dress is too low and her scars show, I do want to tell her she looks beautiful, but a woman knows her husband and what he feels just by looking in his eyes.  She knows that I know they look and feel different.  A woman after reconstruction knows that a husband might not look at her bare breasts the same way (better or worse in appearance), but I know for me it was her eyes, her mind, and other parts of her which remained untouched…or maybe untouched by human hands but they are still the same ones that were part of her when we got married.  I will at some point look at her reconstruction as part of her and without hesitation.

Just like your scars, it takes time to heal and feel comfortable again for you to discuss them with your husband.  Actually, while I don’t mind discussing with my wife about the cancer, I just don’t want her to focus on the appearance of her new breasts.  I do want her to be happy with them, but I don’t want to obsess about them.  My wife would rather me tell her how beautiful she looks in her new dress without prompting than to have a 20 minute discussion on if her scars are fading, if I see rippling, or other imperfections.  I’ve had those discussions and while productive, the conversation did not seem natural (no pun intended).

The reconstruction part of cancer recovery really does belong in the domain of the woman.  I didn’t want to look like one of those husbands who “shaped his wife’s looks”. In the end I took my wife “for better or for worse”.  My wife chose her option and I am happy with it as long as she is happy with it. As I look at it, as husbands we have no choice in what your original breasts looked like, we have no choice in marrying women who were stricken with breast cancer, and we should not be a major contributor in deciding what your new body should look like.  What we do have a choice in is being sensitive to our wife’s emotional  feelings and we do have a choice to love them unconditionally.

I mentioned that human hands did not touch my wife’s eyes, mind and spirit, but they have changed through cancer too.  She is more proud and confident of where she is because of what she has been through.  I find her strength to be the biggest turn on.  It makes her more beautiful than ever.

Last weekend was the unofficialbeginning of Summer with MemorialDay and we took that time for the whole family to clean the house and continue with our post-cancer journey.  We threw out the old cancer information pamphlets, the left over get well cards, the sample drain pump and the tons of bedside reading material that was accumulated.  We’re all moving on.  We’re cleaning those cupboards.  We’re fixing our lives and coming on stronger than ever.

Thinking in Rare Air

21 Thursday May 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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Tags

Breast, cancer, dreams, future, hopes, mickelson, music, Phil Mickelson

Sunset @ 30,000 feet
Sunset @ 30,000 feet

More thoughts from 30,000 feet.  Rare air makes you think.  It makes you appreciate.  It helps you to understand.

 I write these thoughts from the air somewhere along the Pacific Coast after having spent a beautiful day in Los Angeles on business.  The weather there is always debon “air” as Herb Caen once wrote I think. There was just enough of a breeze to keep the smog at bay.   I always feel a bit younger when traveling down there on business maybe because I am hanging out in the hip area of LA in Hollywood.  At the same time I find myself feeling quite antiquated for not recognizing the newest starlet as she just pranced by me in front of Le Petit Four…”that was LC, don’t you know?”.  Even if I did, I wouldn’t have recognized her.

The past week has been the fun part of my job at a music conference where we talked about the ever changing landscape of the music industry and listened to fantastic music of yet to be discovered artists such as Meiko and Matt Morris (@mattmorrisfeed).  I’m probably a relative novice in the world of music, but in terms of talking about the industry, its preservation, and its future, it is a great topic.  Working in an industry that is in turmoil keeps your job interesting much like my regular life.

The future has been on my mind quite a bit.  Why?  Because I find it really great to be optimistic about things and the future is something you can dictate yourself.  For example, my wife has been lamenting about not having been to Hawaii in a few years.  So rather than worrying about it, we booked flights for 9 months from now to our favorite hotel.  Sure lots will happen between now and then, but I sure can’t wait for Spring Break 2010.  We aren’t even sure yet what we are doing this summer or this holiday season.   The message though is that my wife was thinking about doing something fun and going to somplace that made her happy and I was more than happy to want to see that happen.

Its always been a great part of my relationship with my wife that I treasure.  I like to dream and my wife likes to laugh at me as if I were the little kids who is telling her that when I grow up that I want to be “an astronaut and meet aliens” (that’s what I told my mother when I was 9).  That was about 4 months before I met Farrah Fawcett’s manager and I decided that I wanted to grow up to be a manager of a beautiful starlet and earn 10% of everything she made.  I know my wife thinks I’m nuts sometimes when I show her photos of beautiful places and say “we’re going there”.

My wife has always been that rock, that voice of reason.  The one who tells me that we should think before we act and to wait a few days and think about it first.  I’ve always been  the one to do quick analytics and go with my gut instinct based upon those calculations.  I believe that this battle with cancer has made her not only appreciate me more, but the attitude of not waiting.  When I used to ask  her thoughts, she used to say, “I don’t know” or “what does it matter?” as if these were just my musings for me and not for her.  Now she realizes they are for all of us.  My wife has been right to analyze things for sure, but I think when it comes to matters of the heart and mind, sometimes it is good to go with your instincts.

Most of all I think we are all beginning to learn how to live “with” cancer and not let cancer lead our lives.  This morning I saw the article about golfer Phil Mickelson’s wife having breast cancer.  My children saw it as well and while I thought to myself that it’s always interesting how nobody really seems to pay attention about it until a celebrity is afflicted : Christina Applegate, Lance Armstrong, Patrick Sayze, Steve Jobs, etc.,  my son looked at the article and said, “She’ll be okay, right?  They have kids our ages. Sounds like what mom had.  I guess Tiger is going to win a lot of money while Phil is out.”  That statement hit me hard, not by the words, but by his casualness.  First it showed me that my son hadn’t found the experience of the last 9 months to be all that traumatic, second that he seemed to think of cancer as something that yoursurvive and not something that kills, and last that he felt if a celebrity and their family had cancer, it must be something somewhat normal.  I spent all day thinking about whether all of those outcomes were good.  I don’t want my son to be terrified and I do want him to erealize this can hit anyone and I am happy that he wasn’t faced with the emotional issues.

My thoughts do go out to Phil and his wife Amy as well as all those who are suffering from breast cancer right now.  I am happy to be exiting that long dark tunnel with my wife’s hand in mine and really look forward to seeing that daylight at the end.  Sometimes that daylight still looks like 4 years away, but at least its bright and we have a lot of good hopes ahead. 

Midlife Re-birth: 8 months post-surgery

13 Wednesday May 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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Tags

Breast, cancer, implants, mid-life crisis, skin-sparing mastectomy

 We don’t understand life any better at forty than at twenty, but we know it and admit it.  – Jules Renard  

This weekend marked 8 months post-surgery for my wife.  She has since had reconstruction, a follow up surgery, 6 months of shots,6 months of a test bisphosphonate, and Tamoxifen.  She has finally started to take another drug to lessen the effects of her side-effects of the drugs.  I really don’t know how she does it.  All these distractions and she continues her duties as class parent, team mom, family glue, top chef, businesswoman, and loving wife.  It’s all become par for the course.  Just yesterday she sent me a text at work to tell me that she had another follow-up procedure scheduled for the end of the summer.  It just seems like such a casual thing now for her to write me and say that she is going to have more surgery, but this is just a stage in our life, not a WAY of life.  We are going to move past this chapter.

In truth as we’ve come to realize her skin-sparing mastectomy is still a relatively new thing in the world of breast cancer surgery.  While it does save your skin and is less traumatic for the survivor than we ever imagined, there is still quite a bit different from the traditional “Hollywood boob job”.  Skin-sparing mastectomy with immediate reconstruction has become popular with patients because, compared with delayed reconstruction, it improves the cosmetic result, reduces cost and anesthetic risk, and in one sitting completes most of the surgical treatment that the patient will ever require for treatment of her breast cancer.   Provided that the breast skin is not involved with or close to the tumor, physicians prefer to perform the mastectomy with optional removal of the nipple-areolar complex (total skin sparing) and the tumor biopsy scar.  The mastectomy is otherwise the same as a standard modified radical mastectomy with removal of all breast tissue and an axillary node dissection.   The part that is difficult for most patients is that so much tissue is removed that the breast becomea basically a large water balloon that holds a big bag of silicone, saline or whatever.  Because the skin is now so much thinner, it is hard to prevent wrinkling and rippling.  With so little tissue left, the breast can look a little misshapen at times.  That said, the results do look pretty good and like life small adjust ments will be needed.  Yes, this is the procedure that you hear for celebrities like Christina Applegate. 

I know many women don’t want to talk about this too publicly.  I mean, how can you complain when you think about the alternatives?  These women are so thankful yet feel so close to what they can see is the final visual end to their suffering.  All of this though is a change.  A change from what past generations had. Not only was life extended but the quality of that life has been improved. 

It is with that frame of mind while sick the past couple of weeks it come to my mind that suddenly we were so accepting of all these new changes in our life.  We’ve reached that mid point in our life.  They talk about midlife and the word crisis is always used to describe it.  I don’t think so.  Sure we’ve come across some bumps in the road.  I told my wife that rather than a mid-life crisis, this is half-time for us.  In the world of sports, this is the time to make adjustments and a time to assess where we are, where we’ve come from and where we want to go. 

Such is mid-life for us I guess.  After taking 10 days off from running because of a nagging cold I found my rested body was now better suited to tackle my nightly runs again.  I told my wife how my body was responding and she reminded me I’m not getting any younger although I may feel young.  Either way, the rest gave me renewed energy and a new energy and perspective that allowed me to set new personal bests three days in a row.  The 10 days of mental relief reminded me of how lucky we are and how blessed our life is.  It isn’t about fate or faith, but about the sense of being.

We took our time to plan that second half, revise our targets and think about how we want to live our life.  It is not about settling.  It is about making choices and pursuing what we believe to be important to both of us.  The one thing we agreed upon is that this is a shared goal and we wouldn’t have it any other way.

Beauty at a Dark Time

06 Friday Feb 2009

Posted by route53 in Breast Cancer - A Loving Fight

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Breast, cancer, husband, U2, wife

You make me want to lose myself in the mysterious distance between a man and a woman – U2 (A Man and a Woman)

Blossoms at Yerba Buena Gardens

Blossoms at Yerba Buena Gardens

The skies were dark and ominous this morning as I drove to work.  As it started to sprinkle I noticed the trees along the sidewalks had started to bloom.  The cherry blossoms along Japantown looked gorgeous and popped against the gray skies.  They had a strong glow about them.  Maybe they had been glowing for a couple weeks and I hadn’t noticed them until we got our first storm clouds of the year.  It is amazing how such beauty shines through even more at the darkest of times. 

These are curious times in the economy and everyone seems to be more on edge than normal.  You might say there are dark clouds everywhere, and not just in the sky.  I even overheard a homeless man here in San Francisco today tell a lady that he was better off than her because he didn’t have a mortgage or rent to pay.  So true that we should get heckled by homeless people now.  My own company has had layoffs and no matter who you are these days, people are worried abour their jobs.  I hear it, see it and feel it.  Even though I had an outstanding year there was still a nervousness going over my weekly call.  In reality, I had nothing to worry about, but in these times you never know (and one of my colleagues was actually let go today).

Despite all of this I still manage to slow down and smell the roses.  Or in this case I was looking for the analogy to my drive to work.  Was I capable of finding the cherry blossoms in my life against the dark sky?  It made me think about some of the stories I’ve read recently as well as my own.  The story of Chad Moutray and his daughter who now must move on with each other and their memories of their wife and mother.  They are each other’s cherry blossoms.  Last year despite all of the surgeries and doctor’s appointments, my wife’s beauty just showed brighter than ever to me.  I don’t think it has shone brighter and it has been there all the time.  We’ve known each otherfor over half our lives, but sometimes the dust gathers like it does on a lightbulb and you need to wipe it off and you suddenly realize that 60-watt light bulb is really 100 watts. I think in hard times like this the dust comes flying off and that dark room is radiated by the beauty that exists.

My wife had her oncology appointment and monthly shot today.  It was a little painful this time she relayed to me.  The O/S pellet they shoot in to here is something she’ll have to get used to and hopefully the side effects will lessen.  The wait is still what kills her as they were running 2 hours late.  Good thing I gave her a bunch of magazines for the waiting room.  There were no reports on her ability to metabolize Tamoxifen yet, but the side effects seem to indicate that she is okay with Tamoixfen and her cholesterol seems to be declining.  My wife loves to go into details running through her lab reports and every last minute of conversation she had with her nurses.  I laugh at her that it is more painful to me to hear her detailed reenactments of the day than to get a needle poked into me.  Listening to her get a shot is almost as bad for a guy like me who is squeamish about needles.

The day before, she had her meeting with her plastic surgeon to go over any adjustments she is going to need in March.  It was one of the appointments I missed because I was traveling.  Of course she forgot to mention the ONE thing I wanted her to speak about and we laughed.  Same old wife…she doesn’t listen to her husband.  Maybe that is what keeps her young!

In the end, the day came out beautiful.  I was able to get home and see my kids for the first time in a few days.  Additionally despite the very mundane conversation I had a chance to spend some time with my cherry blossom in my life.

My Wife and Her Breast Cancer Equal My Inspiration

28 Wednesday Jan 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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Tags

Breast, cancer, Forrest Gump, Inspiration, life, love, running, surgery, wife

My most brilliant achievement was my ability to be able to persuade my wife to marry me.
— Winston Churchill
The Santa Monica Boardwalk this evening

The Santa Monica Boardwalk this evening

I have always sought inspiration through true life stories.  I guess I never thought it would come from my life partner.

Those who know me and see me every day will tell you that over the past year I’ve lost over 10 pounds, ran over 1200 miles last year and can run a 5k faster than I did 20+ years ago when I was in highschool and college.  That might seem trivial to those who exercise daily,  but ever since I’ve graduated from high school I never had the drive for long periods of time to work out religiously and take care of myself.  Why now?  How do you find that kind of drive?

Last year when my wife was diagnosed with breast cancer I was down, but my wife told me to make sure I kept running.  The week after she was diagnosed I remember watching Forrest Gump with my children and there is this scene where his love, Jenny tells him,  “If you ever get in trouble, don’t try and be brave.  Just run.”  There is a scene where Forrest doesn’t know what to do and starts running.  I’ve been doing the same, although I ran with purpose.  My wife is my inspiration.

We all get inspired by bigger than life stories.  The pilot who saved 155 people by landing his plane in the Hudson, the new President who is breaking many barriers, the man who risked his life to save an unconscious mom and her two toddlers from a burning home, etc.  Sometimes we see movies like the first one I ever saw called “Brian’s Song” that had cancer involved and get inspired for the moment or for a period of time. 

 But when we live with someone who inspires you on a daily basis it changes you. My wife has to take pills every day, get shots once a month and every day think that there still might be a cancer in her body that might come back to haunt her.  Yet every day, she kisses me, makes breakfast, smiles and goes about her work.  All those pills, shots and everyday worries are not something she shares with me unless I ask.  I don’t ask because I want her to feel like life is as normal as can be as that is the way she wants to live it every once in a while.  She wants to put away that she is a Cancer Survivor.  She doesn’t want to be treated like she’s handicapped.  How can you not be inspired when the person who shares a bed with you every night does so with smile on her face.  She’s had two surgeries and is staring a third in the face, yet she is wanting to bring it on.  She’s had 14 hours of anaesthesia in less than 6 months.  I can’t imagine what it would be like to have those hours missing from my memory.

The other night she caught me staring at her sleeping before I went to bed.  I wanted to soak in her peacefulness, her beauty and my appreciation for her to still be with me and our children.  She asked me if anything was wrong and I just smiled and she gave me that knowing kiss that all wives will give when they know you appreciate them.  It’s the same kiss you get when you stand before all your friends and family the day you get married and state your love for each other.

Today I am off away on business again.  Away from my family.  It hurts to be away knowing my wife is still not 100% yet, but she’d not want it any other way.  Tonight I had a chance to visit the Santa Monica Boardwalk (see photo).  I told my business partner (no offense) that I wished it was my wife with me instead.  She deserved this sunset on this beautiful evening more than I did.

Getting the Best out of Yourself

22 Thursday Jan 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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affirmation, Breast, cancer, caregiver, fortittude, husband, love, Obama, President, strength, values

Try not to become a man of success but a man of value.
Albert Einstein

The quote above to me is so poignant. I truly believe though that it must become second nature to be a man or woman of value and you need to instill that from within.

I still remember the day that I almost lost my dad back in July of 1996. He suffered a heart attack and his heart stopped beating, but the doorman at the Fairmont Hotel broke into his car and started his heart beating. My father remained in a coma for two weeks (yes during the Atlanta Olympic Games) before coming out of it. My father suffered some brain damage (loss of oxygen to the brain) which caused him the loss of short term memory and often caused him to lose orientation of what year it was. It was almost like Alzheimers except some new memories were created and he only forgot the things that didn’t matter to him.

My mother refused to put him in a home and acted as his primary caregiver for the next 10 years. Although he was never the same person again, I am so happy that his near death kick-started me into having a family and grandchildren that he got to meet and know. He continued to to teach me new lessons even then.

One of those was that my dad lost his ability filter his thoughts. He did not hold back his feelings about things, people or situations. Just imagine if you just started telling everyone what you thought of them. Well, my dad was pure. He smiled at people he didn’t recognize and even at people I thought he didn’t care for. Later I would ask who they were and he said, “I thought you knew”. When my mom would drag him to flower shows I’d ask him how it was. He’d say it was really boring but my mom seemed to enjoy it. He never had a bad thing to say. He was just naturally a positive and gentle person. His illness was a truth serum that some couldn’t handle. We saw others with the same problem who became vicious towards family and friends. An old co-worker of his pulled me aside at his Life Celebration and said, “I knew your dad didn’t recognize me, but that twinkle in his eye and his smile were still the same. He made even strangers feel special.”

It really taught me to seek the kindness in others and to see things first with an eye towards the positive. We are often taught to be protective and cautious and I realize that can really hide the opportunities that you might be offered. There are never enough favors that you can give or thank yous that you can say. My dad was definitely a man of value. A man who valued the relationships and loves in his life so much that it was instinctive.

After a while it should just come naturally. I often hear about how people say how hard it must have been to take care of my wife during those days after surgery and those long weeks of waiting. I think my love for my wife made me her natural caregiver. I knew that it was just the thing to do. Put my fears and hopes aside to be all that I could for my wife. I think having been a caregiver for my dad those years, watching my mother care for her husband (yes they argued, but they loved each other), and then caring for my mother during her cancer gave me a little headstart in caregiving, but not much. The most inspiration though came from the relationship, the strong relationship, I have with my wife. They say your true colors come out when you have times of crisis. I think I showed myself my own true colors and I’m proud of what I saw.

I mention this because in the book I read, My Life with Laura, my friend Chad showed his true colors as well. Although he had only known his wife a few short years, his dedication showed the love of a lifetime. I have read stories about those who don’t get support from their husbands or family members during these times and I think that might just show a crack in the armour that had been there already. My wife and I have a few cracks especially when it comes to communication. And it definitely showed a bit when we had some intense moments, but our love was and is strong.

I know I’ve written about this before in bits and pieces, but I have to repeat these mantras occasionally. I listened to our new President’s speech about strength and fortitude and the need to test ourselves in the worst of times. Now is when I really am testing myself. I already see these next several months are going to be tough on me for different reasons than health.

In the end I just need to make sure that I find myself as a person of value and to instill that upon my life on a daily basis.

My Life With Laura – Book Blog Tour Interview

19 Monday Jan 2009

Posted by route53 in Breast Cancer - A Loving Fight

≈ 6 Comments

Tags

barack, blog, book, Breast, cancer, caregiving, Chad, husbands, interview, Martin Luther King, MLK, Moutray, Obama, tour

Faith is taking the first step even when you don’t see the whole staircase.
Martin Luther King, Jr.

Author Chad Moutray and his daughter Charlotte

Author Chad Moutray and his daughter Charlotte

 I am proud today to host Chad Moutray, author of My Life With Laura: A Love Story, on my blog today. Chad is on a blog book tour to promote his book and this is his 6th stop to spend some time discussing his book. While the book details his courtship, wedding, family and then their battle with his wife’s breast cancer, I am going to focus on his efforts as a male caregiver as I am the only male on his book tour and I hope to shed some insight on “the other half” of breast cancer. 

I’ve always said, Route 53 is a blog of my journey through life and while I say each of us has our own journey, we often run parallel with others for part of that road.  Some of us drive fast along that road and others a little slower. These roads are what I call life stages and are created by life events.  Chad and I have separately shared a life event as both of us became caregivers for our wives who had/have breast cancer.  Unfortunately breast cancer seems to be all around us these days days (statistics say 1 in 8 U.S. women will have breast cancer in their lifetime). You might think nothing of it, but in Chad, I found someone who not only went the extra mile for his wife, but truly lays his soul out there for everyone to read in his book.  Sadly, the book does not end happily as Chad’s wife lost a valiant battle. 

 In his book, Chad provides us with the often forgotten perspective on not only the fight against breast cancer, but the emotions surrounding the co-survivor or surviving spouse.  As I read the book, I had to read it away from my wife as it was so easy to put myself in Chad’s shoes.  His story could very easily have been my own.  I hope that other men read it and think of how they would react or want to react if they were put in Chad’s shoes.  Below is my interview with Chad about his book:

Route53: Chad, we’ve shared some chats and emails in recent months.  I don’t know if I’ve said this before, but first let me say that I didn’t know Laura, but have met many “Laura and Chads” over the past several months and am sorry about the loss of your wife and Charlotte’s mother.

Chad Moutray: Yes, sadly, there are too many people in our same situation.  That is why I think that this book has been so well received.  Thank you for your condolences for Laura’s passing.

Route53: Let’s first talk about the inspiration for the book.  I know you say that this book was written for your daughter Charlotte so that she could read about her mom before the memories faded and maybe got a little distorted.  As I read the book, I couldn’t help but see another purpose.  This book was written for many and not just Charlotte.  I read it as a place to put all your love and memories in a safe place so that you could move on.  Maybe in a cathartic way.  How much of this book would you say today (besides Charlotte) is this book for you, for others fighting the battle against cancer, for her family, and for her friends?

Chad Moutray: My original thoughts for the book were to help Charlotte better know her mother.  In fact, the book in dedicated to her, who was two-years-old at the time that I started writing.  (She is now almost four.)  But after I started writing, several friends and family members told me that they wanted to read my book when it was finished.  I had a log of pent-up demand, each of whom was anxious for my to publish my memoir so that they could read it.  In that way, I began writing the book knowing that it could be read by many people, some of whom I did not know.  Since its release, I have been proud of the fact that so many people have appreciated the book and have been inspired by Laura’s strength and faith in battling her breast cancer. Yes, I found that writing the book was therapeutic for me.  In the months after Laura’s death, it gave me a project to work on during those quiet moments in the house.  It also allowed me to reflect on the times that I spent with Laura, both good and bad, and more importantly, it provided me a forum to put my thoughts on paper.  I would encourage anyone going through a loss to start writing, whether they make their words public or not.

Route53: For me, the hardest part of the book was reading Laura’s journal entry to you and about what she wanted for you and Charlotte.  My wife felt close to doing the same thing so I felt like I was reading my wife’s own letter.  When did you first read that entry and how much does it enter your mind to this day?

Chad Moutray: Men, of course, are taught to never read their girlfriend’s or wife’s journal, and I did not open them until after Laura’s death.  I was surprised by many of her entries.  She expressed her thoughts on daily life, her frustrations with motherhood and then in battling breast cancer, and her religious inspirations.  Some of these entries were difficult for me to read.  I was particularly touched by the letter that you cite, but mostly, I was surprised at its timing.  She wrote about her desires for Charlotte and me after her death … but it was written over one year before she passed away at a time when the thought of this was far from most of our minds.  While I did not read this letter until later, much of it sounded familiar, as she and I had discussed some of it in the months before her death.

Route53: Every woman who finds out she has breast cancer remembers the phone call or the doctor giving the diagnosis.  I think husbands do remember too.  I know I do and I know you do.  I often get women who write me saying they wish their husband was as supportive and I always think that the moment you hear is when you know how you will be.  You and I both took that step forward instead of back   To what do you attribute your strength in the face of Laura’s battle with cancer?  What made you the supporting husband that you were?

Chad Moutray: I would refer to two things.  First, I remember my grandfather growing up.  My grandma had a number of heart attacks and was often hospitalized. He remained a beacon of strength throughout her ordeals (despite the fact that she survives him by almost thirty years), and it left an indelible imprint for me on the role of the “man” in such situations.  You are to be a “rock” – someone who everyone looks to for support.  You can see much of this in my actions during this time.  In public and in front of Laura, I was that “rock” even when I was privately hurting inside.   Second, like Laura, I relied more and more on my faith, growing more spiritual as time progressed.

Route53:  What would you say Laura’s battle with cancer taught you about yourself?  Has it changed you or your actions at all?

Chad Moutray: It changed me forever.  I am a different person today than before.  Yes, life goes on, and it has for me.  But, I have a different outlook, and I feel compelled to “give back” to the many people who were so helpful to us during our struggle.  In some ways, the book also is my expression of this.  I tried to write an honest book that showed the true challenges of battling cancer, and in that way, it appears to have helped or inspired some of the cancer families who have read it.

Route53: You mentioned that you hid your fears from Laura and when you did open up, she tried to protect you.  I found the same with my wife.  According to a US News and World Report story, they say the men who are successful in coping as breast cancer caregivers for their wife do two things:  1) Rather than try to be “fixers”, they lend an ear to help with coping and 2) They share everything together.  What are your thoughts on that?

Chad Moutray: As the “rock” that I mentioned earlier, I never let Laura see my emotions.  In hindsight, that was probably a mistake.  Laura would have preferred that I had expressed myself more to her.  Had I done that sooner, she might not have tried to protect me later. 

Route53:  As Laura’s primary caregiver, what were your main resources of information about Breast Cancer that you think would be helpful for other spouses?

Chad Moutray: I relied on information from books, handouts, and the Internet.  Laura, to be honest, relied on these sources even more than I did.  But, my most important source of information was the doctors themselves.  I tried to go to as many of the doctors visits as I could.  This allowed me to show my support for Laura, but it also ensured that I knew as much about her treatments and progress as she did.  Sometimes, the doctors provided an enormous amount of information during a short visit, and she would often comment that it was good to have two sets of ears listening to it.  

Route53: If you could pick one thing, what did someone do specifically for you, the caregiver, to help you through the year and half fight against breast cancer?

Chad Moutray: We had tremendous support from family and friends.  Our church, for instance, was always there providing meals, rides, care for Charlotte, or someone to talk to.  I cannot see how we would have been able to do all that we did without this support.  In later months, we relied on lotsahelpinghands.com to post our needs, get volunteers, and communicate Laura’s progress.  This was a godsend which helped ease the burden of caring for Laura at a time when her health continued to deteriorate.

Route53: When I read the book, I was amazed at all that you accomplished in just a year and half of cancer in your lives.  Can you point to one moment or thing that you did that made you feel that you made Laura’s last days on this Earth richer and less painful?

Chad Moutray: Laura did not let cancer stop her from doing things, and our oncologist supported her in this.  We went on a number of vacations, including to Aruba and two other beach trips in the summer of 2007.  These trips were a lot of fun, and Laura looked forward to each one.  She was also the type who put things on the calendar hoping that we might go to them.  One of those was a wine tasting event at Mt. Vernon, George Washington’s home, in the fall of 2007.  By that point, Laura was in a wheelchair, but she still wanted to go; we went on a double-date with another couple.  It was our last date together, but one that I will never forget.  (This story is not in the book.)  She clearly life to the end.

Route53: Sometimes “bad husbands” who abandon their wives when they can’t handle the stress give men a bad name in the fight against breast cancer.  Actually a 1999 Canadian Study called, “Marital Stability After Breast Cancer” found that there was no difference in divorce rates and separation  when looking at similar groups of men with wives who had breast cancer and those who did not.  Stories like yours obviously give men a better reputation.  If you could give advice to other men (and wives) out there who are going through rough times in their battle, what would you tell them?

Chad Moutray: Life does not always go according to plan, and it is easy to say the cliche, “That is not what I signed up for” and call it quits.  Laura and I met, fell in love, got married, and had a child; it was the typical life plan.  But, then it changed, and life became difficult.  Many of our friends went on to have second or even third babies, and Laura was secretly jealous of them.  Cancer was not what she signed up for either.  We were a young couple and kept hoping for a miracle. When things deteriorated, it was not easy; I prayed for patience, and I was stretched thin.  To be honest, though, I never considered abandoning Laura.  After she passed away, several women came up to me and told me how impressed they were that I stayed with Laura until the end.  The comment surprised me.  I loved my wife, and Laura and Charlotte needed me too much.

Route53: Last, please give us an update on Charlotte and your state of mind.  Have you fully been able to move on?  Now that it has been over a year, have you seen any emotional scars for Charlotte?

Chad Moutray: Laura will always be in my mind.  Charlotte will guarantee that; in addition to being Laura’s daughter, she looks exactly like Laura.  Such a constant reminder makes it difficult at times.  Yet, life moves on.  Writing the book helped a lot, and after several months, I began to date again.  This was awkward at first, but easier now.  It helped that Laura was so insistent that I move on and find someone nice to help raise Charlotte (even to the point of trying to set me up); the fact that she said this to so many people made it easier for others to accept my dating, as well.  As far as Charlotte, she is adjusting to full-time daycare and is doing okay.  She still talks about her mother and can tell you that her mother died from cancer … but has no idea what cancer is.  Someday, I hope that she enjoys my book and learns about how fun her mother was and how strong she was.  

Route53: Chad, once again, thank you, Laura, and Charlotte for sharing your story with all of us. I know that I have found much empathy and inspiration from your story. Chad’s book can be purchased here: http://www.lulu.com/content/1828195

 Please continue to follow the blog book tour by following this link to the schedule:

 http://moutray.wordpress.com/2008/12/15/blog-book-tour-schedule/

 Addendum to Post:

Every book means something different for each person.  Although my wife suffers from breast cancer, I read it as a love story.  Even the parts about cancer were about love for me.  Below is an excerpt from an email I shared with Chad after finishing his book.  I hope you all find his book as inspiring as it was for me:
  
I just wanted to let you know that I finished the book.  I admit that I did not feel comfortable reading anything after your eulogy as those letters I feel are words for Charlotte.  I have to say that the book read faster for me once I got to her part with cancer.  Perhaps it was that it was all so familiar to me.  My feelings were similar to yours in many ways and reading her journal entry to you was tough for me.  I hope you don’t mind , but I have discussed your book with the husband’s group at our clinic as you have gone through and they are experiencing many things that I did not have to endure.  I’m also going to pass the book along to one of the fathers at our school who lost his wife at the beginning of the school year leaving he and his two young sons behind.

Keeping the Family Together

10 Saturday Jan 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

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Tags

barack, Breast, cancer, caregiving, family, Obama

Love has nothing to do with what you are expecting to get — only what you are expecting to give — which is everything. What you will receive in return varies. But it really has no connection with what you give. You give because you love and cannot help giving. – Katherine Hepburn

I found the quote above on a site about Spousal Caregiving and it really hit home.  We’re done with all the surgeries yet this week my wife had three days in the hospital and if you thought the waiting was excruciating before and during the surgeries, it is only worse now.  I guess it is like they say about Chinese Restaurants.  You know it is good and authentic if Chinese people work there and it is busy and filled with Chinese people.  I think the same goes with a breast cancer clinic.  If you have to wait hours even if you have an appointment, then your doctor must be real good.

Last night my wife spent 4 hours at the hospital for a shot, a visit with the nurse practitioner to go over her side effects from her clinical trial, and then to visit with her rock star oncologist.  You are wondering why?  Well the reason is that she spends so much time caring and listening to each patient that she does fall behind that most people understand.  Today was a follow up meeting with the plastic surgeon.  My wife has some nip-tuck things she wanted to have taken care of  he took a look.  and told her to book some time.  We checked his schedule but we’re talking about mid-April!!  Well his wonderful nurse said to book a time but if we could do something on four days notice, we could get something done pretty quick if we just sit on stand-by. 

My travel schedule looks crazy already this year and I just hate being away from my family, especially now.  Today was the first day that I had to watch my son practice his basketball.  He’s good at it.  Not great, but the joy on his face is all that I care about.  I drove him home and started to talk about how he could be better, but realized that telling a kid on a Friday afternoon about the nuances of practicing hard and being a floor leader were just not something he wanted to hear.  I chuckled at myself, “Come on dad, it’s just practice”.  I was just trying to make up for my missing his first game of the season as well as his favorite thing…the annual Little League Skills Assessment Day.  Last year I was so nervous watching him that my stomach was in knots. All these men with clipboards and stopwatches taking notes on my 8 year old, 55 pound kid as if he was some kind of bonus baby.  Well he did well enough to be put in the elite group where they take the top kids and spread them evenly so no one team is overly loaded with skilled players.  This year my wife gets the fun duty.  It did feel good though to spend some time alone with my son.

Despite the stress of today’s waiting at the hospital we were able to have an early dinner as my daughter was requesting some family time.  Fortunately my flight was late and we could squeeze it in (amazing as I still only arrived at the airport 40 minutes before my flight on a Friday night).  My daughter has such a nurturing nature about her for a 6 year old.  She loves her older brother and she is always looking after her mom and telling me when she is doing something that she doesn’t think my wife should be doing (yes, she is a bit of a tattle tale in that way).  She cares deeply and is sensitive to the fabric of our little quadrangle of a family. 

I guess Katherine Hepburn was right…..you do what you do when you truly care.

I did buy some tickets for Valentine’s Day for the two of us.  Hopefully my mom won’t mind having her grandchildren over as her Valentine’s.  I really need to get my wife alone and see her have that smile back on her face.  When we lived in the New York Metro area, Valentine’s was a big day when I courted her.  We usually planned one big meal where we would eat at a top 20 NYC restaurant.  I remember those Valentine’s Days 20 years later!  We’d have to make a reservation before Thanksgiving to get any of our choice restaurants in NYC. Ah…to be young again….

I did pick up the Audacity of Hope by Barack Obama at the airport tonight.  I was curious.  It almost reads a little too highbrow like a lawyer wrote it.  I’m sure the intellectual Democrats follow it, but I’m not sure if the average joe on the street Democrat would really follow.  I’m not big on politics personally as I feel like it is a topic that divides and not brings people together so you might not see much about my political opinions here…and that is a good thing.

Take care of your bodies….

Breast Cancer Caregiver Guide for Spouses

09 Friday Jan 2009

Posted by route53 in Breast Cancer - A Loving Fight, Route 53 - Life is A Highway

≈ 3 Comments

Tags

Breast, cancer, caregiver, guide, male, spouse

The source of all life and knowledge is in man and woman, and the source of all living is in the interchange and the meeting and mingling of these two: man-life and woman-life, man-knowledge and woman-knowledge, man-being and woman-being. – D. H. Lawrence (1885-1930) English writer

I hinted at this yesterday but it has been beating on my mind all day.  When I retraced my steps over the last several months I looked back and wonder how I made it with my senses still intact. 

Let me first say that what the men go through when their wives have breast cancer is nothing compared to what their wives or mothers or daughters will experience, but I believe the life partners  (I’m mostly talking about husbands) are a critical part of the management when cancer enters a woman’s life.  There is no doubt that men get a bad rap about how we react when our loved one tells us that she has cancer in a part of her body that is such an intimate part of our physical relationship.  But aside from where it is located, we just aren’t ready for cancer period.   Even if we men were better prepared, all it takes is one bad apple to spoil the cart and our reputation as a group would be back out curbside.

I’m not saying we men are the fairer sex.  Heck no.  We definitely have a few (make that many) flaws.  That’s why we love women so much!

What I am saying is that while my wife came home with packets of information and videos, there was nothing for me.  Not a word of guidance.  I spent hours taking notes at each doctors visit, I ended up having to do lots of research and looking to other women and their spouses for what to do and more importanly what not to do.  Its harder than you think.  I don’t even think that my wife’s surgeon shook my hand the first time we met.  Mind you she is a wonderful lady and we have a great relationship, but I don’t know if the doctors know what to do when the spouse shows up.  Rightly so, they spend all the time talking to our wives.  They need tools to give us. I don’t need much.  All I needed was a one pager.  Something that said, the best thing you could do right now is hold your wife’s hand.

Well I gathered a lot of information.  Unfortunately I found some good resources after the fact, but I saved them.  I have links to most of them in the Cancer Resource Links in the right column of this blog.  So if you’ve just found this, take a look at these links specifcally for men.  Some come from friends I’ve met and others from research I’ve done:

Good Websites:

Men Against Breast Cancer

Breast Cancer for Husbands

Breast Cancer Husband

Some Real Personal Blogs:

The Moutray Chronicles

The Price of Love

Articles Every Husband or Father Should Read:

Love Her Tender

A Guide for Clueless Guys

A Supremely Kind Spouse

I hope you all find these useful in your journeys wherever you may be.

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